So Miss Avery did not have the best of days yesterday. It was not the worst of days. It was nothing like last Saturday, however it was an off day. She had a couple dips and they gave her an extra dose of her amophyllin (her pick me up). They also put her on a diuretic. I guess it is pretty normal since they receive so much fluid.
So we are expecting her to lose a little weight as a result of the diuretic. Yesterday when they weighed her she was back to 850 grams from 866 grams. It's not much of a change, but still it is not in the direction we want her to go. We really are not looking forward to seeing her move back any further.
We realize nothing about her situation is out of the norm, however it doesn't make it any easier to see her have to be given extra medications and to lose weight even if it is only a little. It just feels like we are getting further away from her coming home vs getting closer which is what we want.
Overall she is doing great and we realize this is going to be a long road. We have been told over and over to expect ups and downs. She is going to have good days and bad but that doesn't make them any more tolerable to watch especially since there is nothing we can do to help her.
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